唐苏勤副教授与Paul A. Boelen教授合作在《European Journal of Psychotraumatology》发表了论文
2026年6月22日
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延长哀伤障碍已被纳入《国际疾病分类》第十一次修订本（ICD-11）和《精神障碍诊断与统计手册》第五版文本修订版（DSM-5-TR）。然而，既有丧亲研究往往样本较小、数据分散，使用的测量工具和变量编码也不一致，限制了研究者对延长哀伤障碍的患病情况、症状特征及风险因素进行系统比较。基于此深圳大学心理学院唐苏勤副教授与荷兰乌得勒支大学社会科学学院临床心理学系Paul A. Boelen教授等合作撰写文章“Pooling data from studies on prolonged grief: The multi-region archive of research data on bereavement and loss from empirical studies (MARBLES) project"于2026年5月26日在《European Journal of Psychotraumatology》上发表。研究发起的MARBLES项目，旨在构建建立一个国际研究联盟，将不同研究的原始数据标准化、协调并整合为统一的个体参与者数据档案，以推动延长哀伤研究。迄今，该MARBLES已汇集来自9个国家、32个数据集的16,666名丧亲者的数据。所有数据集均包含延长哀伤障碍症状、社会人口学信息及丧失特征变量；多数数据集还收录了情绪调节能力及共病症状方面的资料。本文报告的初步分析，重点对丧亲者的社会人口学特征、丧失相关特征，以及延长哀伤、创伤后应激和抑郁症状等数据进行了协调与标准化处理。初步分析显示，参与者的平均年龄约为45岁，其中约70%为女性；四分之一的参与者失去的是伴侣，另有四分之一经历了非自然性丧失。经多重插补法分析，符合ICD-11所定义的“可能延长哀伤障碍”诊断标准的比例达18.3%。文章指出MARBLES的建成表明，建立一个遵循FAIR原则（可查找、可访问、可互操作、可重用）的延长哀伤症状数据档案库具有可行性。尽管MARBLES目前已可用于探究延长哀伤症状及其相关情绪问题的流行率、发病机制及预测因素，但未来还需不断演进的研究资源。随着更多数据集的纳入和使用范围的扩大，其应用潜力将进一步释放。未来的拓展方向应优先纳入目前代表性不足的群体（如移民），并补充社会、认知及神经生物学等关键变量。
摘要
Introduction: Prolonged Grief Disorder (PGD) was newly included in the 11th edition of the International Classification of Diseases (ICD-11) and the text revision of the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5-TR). There is a need to increase our understanding of the prevalence, nature, and risk factors of this condition. Research in this area can be advanced by pooling existing datasets.
Objective: The MARBLES (Multi-region Archive of Research data on Bereavement and Loss from Empirical Studies) project was initiated to create a consortium of researchers conducting studies on PGD. Its goal is to harmonize and combine data from separate studies into a unified, individual participant data-archive, boosting bereavement research.
Methods: To date, data from 16,666 bereaved individuals have been compiled from 32 datasets across nine countries. All datasets include data on PGD symptoms and sociodemographic and loss characteristics; most also include data on emotion regulation and concurrent symptoms. For preliminary analyses presented in this paper, data on sociodemographic and loss-related characteristics and on PGD, posttraumatic stress, and depression symptoms were harmonized.
Results: Regarding the preliminary analyses, participants’ mean age was in their mid-40s, about 70% of the participants were female, one in four participants had lost a partner, and one in four participants experienced an unnatural loss. Analyses (with multiple imputation) indicated that 18.3% met criteria for probable PGD (ICD-11).
Conclusion: The MARBLES archive demonstrates that it is feasible to build a FAIR archive of PGD symptom data. Although the archive can already be used to study the prevalence, pathogenesis, and predictors of PGD symptoms and associated emotional problems, it is intended as an evolving resource. Its potential will expand as additional datasets are added and use of the archive grows. Future extensions should prioritize the inclusion of underrepresented groups (e.g. migrants) and currently missing social, cognitive, and neurobiological variables.